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How to Get Social Security Benefits for a Disorder You Have Had Since Birth


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8/7/2014
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You always knew that one day, your diagnosis would catch up to you. You’ve always felt fine, ignored, or denied your symptoms—almost as if you could wish it away. Now that it’s getting hard to go to work every day, you are realizing wishing isn’t good enough. You’re going to need help to pay your bills for at least the next year.

Getting Social Security Disability Benefits for Congenital Disorders

Patients who are suffering from disorders they have had since birth will often be angry, frustrated, or even ashamed when the effects of their diseases begin to show. In some cases, patients may not have any outward symptoms of their condition until late in life; in others, patients have had some difficulty in earlier years that has gotten worse over time.

The good news is that many congenital disorders qualify for monthly benefit payments from Social Security, including congenital anomalies, syndromes, infectious diseases, or chromosomal disorders that interrupt normal bodily functions, or interfere with development. For example, you may be able to get benefits if you have been diagnosed with:

  • Tay-Sachs disease (both juvenile and late-onset forms)
  • Trisomy X syndrome (XXX syndrome)
  • Fragile X syndrome
  • Phenylketonuria (PKU)
  • Caudal regression syndrome
  • Fetal alcohol syndrome

How to Provide Proof of Your Disorder to the Social Security Administration

In many cases, the confirmed diagnosis of your condition may not be enough to qualify you for benefit payments. Not all people will have the same limitations or degree of symptoms, so you will have to describe how much you are limited by your condition, your symptoms, and your treatment. In addition to gathering medical evidence, you should also keep a diary describing your daily routine and the specific ways in which your condition limits you.

For more information on getting disability payments for a chronic condition, click the contact link at the top of this page to ask us a question about your case.



Category: Social Security

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